And so, it begins. I’m not alone in my CoVid weight battle; after a week at the beach wearing my not-so-teeny tiny bikini, I knew for certain something had to be done.
I saw a camping pal of mine recently and she had already taken the plunge, visited a nutritionist, and lost nearly 70 pounds.
And she eats real food ALL DAY.
After visiting her “weight control person”, I am officially on day two of my own weight control adventure. I’ve already screwed up a bit, but not in an added calory kind of way. ON my plan, I…
Peeing on the Beach: A Living With MS Lesson
The sound of the waves soothes my restless brain as I walk (in my mind) the empty beach in Cordova, North Carolina. The sun’s soft rays warm my early morning body and I pause to smile at the vast blue sky. It's been over twenty years since I experienced this mobility, the total control of my limbs. The freedom of this physical control washes over me, cleansing my spirit and filling my very soul with gratitude.
I am here. I am free. I am grateful.
As a seagull passes overhead, I…
A few years ago I was accused of being fake by a person who also is convinced I don’t have MS; I just drink too much. While I will admit to occasional overly indulging at times in my younger life, my MS is the real deal.
While in disclosure mode, I realize that a period of my life (prior to diagnosis) could be construed as aligning with falsities of character. Married to a man of questionable authentic qualities, I fell into a circle of Real Housewives personalities. I loved the attention, the scandal, the excitement that brought to the table…
To Walk or Not to Walk:
Bioness L300 Go
Yesterday I met with my ortho man and a representative from Bioness where I donned the Bioness L300 Go and walked a recorded 180 steps. The sensation was incredible and filled me with hope. Years ago I first experienced an electric stimulator for foot drop and was crestfallen when my then insurance said “no dice.” Several years later, armed with a detailed application the size of a doctoral thesis, the reply was the same. That insurance coverage was PEIA.
With a combination of age and disability, my insurance has changed to…
DIAGNOSED WITH MS (20 YEARS AGO)AND STILL LOOKING FOR ANSWERS
Stilletos and AFOs
Diagnosed with multiple sclerosis changes your life in many ways. Where once you celebrated that new pair of stilettos, excitement over a visit to the orthotic expert takes precedence over all fashion statements.
Last week I took my pink AFO and myself to consult with Pete, the guy who understands all things drop foot. When I developed a hard/recurring callous on the outside edge of my right foot, the podiatrist suggested a trim on my AFO. Pete complied and altered the device.
It didn’t help. The hateful…
Twenty Years Later
Living with a chronic neurological disease opens doors to experimental treatments for the adventurous soul. I wasn’t enamored with marijuana during my teen years and it wasn’t necessarily because I was a “prude”. I just didn’t like the way it made my head separate from my body and the total out-of-body disconnect I experienced.
Look at me now, chomping away on a gummy.
And hating that feeling all over again.
DELTA-8, 100% Hemp derived.”Take half of one,” Emily at our local CBD Reserve told me. “You’ll sleep like a charm and it should ease your muscle spasms.”
FRIDAY 13 has nothing to do with multiple sclerosis.
Ineed to get off the topic for a minute. Today is Friday 13 and we just had a major thunder storm in my area. The pessimists in my life would equate the two. I, personally, do not subscribe to the superstition; but it is interesting.
Friday 13 Facts:
There’s even a special word for the fear of Friday 13th — paraskevidekatriaphobia.
Friday 13 happens every time the month begins with a Sunday.
In the UK and the number 13 is considered unlucky.
Some attribute the superstitions around Friday 13th to the…
20 years later
Finding balance is necessary with any aspect of life. Finding balance while adding a chronic disease to daily events can be tricky.
In order to balance the physical with the emotional elements of multiple sclerosis, I have realized that sometimes I just need to be selfish with my time.
It is necessary to take care of myself in order to care for all of the additional aspects of life. The phrase “If momma ain’t happy, nobody’s happy” is SO accurate. …