THE MS VILLAGE
Recently, a fellow MS blogger/author sent out this opportunity and asked me to share it with my peeps. I’ve already applied and corresponded with the site manager. My profile did not hit the mark, but a different offering came to me. So it’s all good.
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IT TAKES A VILLAGE
Navigating life with the MonSter can be lonely, but it doesn’t need to be.
Sadly, my “friends” have thinned out since diagnosis. Loyalty shifts when participation is limited. That’s what happened to me. I had people in my life I saw every day. And then…
BANG!
Initially, they had my back. They called. They inquired and delivered offerings of food and get well soon sentiments.
And then they were gone.
They couldn’t devote time to someone who lost her spontaneity. I was no longer “fun”.
I eventually put on my big girl panties and began counting my blessings rather than wallowing in self-pity and disappointment. This wasn’t immediately. It has taken over two decades to realize the joys of my NOW.
Not everyone abandoned me. My best and oldest friends never strayed far, even if they couldn’t fully relate to my situation.
And I have made new friends during my journey. Because of modern technology, I have friends across the globe. Shift. ms is my latest hang-out. Check it out. You’re welcome.
FEEL LIKE A LITTLE PARTY?
Let me introduce you to my personal trainer. Trevor Wicken lives in Colorado. He devotes his life to helping people with multiple sclerosis. His detailed movement plans result from many hours of research. Trevor only asks for your time. If you do the work, positive results will ensue.
Our lifetime goal is to set 1 Million people free using the power of neuro-muscular movement training and build a family that stands united in the pursuit of overcoming MS.
“A reader lives a thousand lives before he dies . . . The man who never reads lives only one.” — George R.R. Martin
Where are my readers?
My earliest memories involve books. Growing up “in the boonies”, my dearest friends were those that lept from the pages of books. To this day, I prefer a book, even a bad one, to most people.
Upon diagnosis, I avoided books about multiple sclerosis. I remained in the fictional worlds of dragons, unrequited love, young adult angst, and otherworldly events. Topics that took me away from the realities of the reality I needed to learn more about.
So, I wrote about my early personal introduction to the MonSter. The process was therapeutic. I Have MS. What’s Your Super Power? received a mixture of reviews, most of them positive and this opened an entirely new reading experience for me. I discovered liked reading about MS Warriors. I enjoyed hearing their stories because I did not feel so alone. The authors of these tomes are like me. We share DNA like no other.
BOOKS I CAN TALK ABOUT (BECAUSE I've READ THEM)
Awkward Bitch: My Life with MS
Multiple Sclerosis For Dummies
by Rosalind Kalb , Barbara Giesser, et al.
Yoga and Multiple Sclerosis
by Garth McLean
Walking on Pins and Needles: A Memoir of Chronic Resilience in the Face of Multiple Sclerosis
by Arlene K Faulk
Multiple Sclerosis: The Questions You Have, The Answers You Need
by Rosalind Kalb MD
The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles
Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis
MS — Living Symptom Free: The True Story of an MS Patient: A Guide on How to Eat Properly and Live a Healthy Life while Controlling, Reducing, and
Eliminating the Symptoms of Multiple Sclerosis
by Daryl H. Bryant
MS Madness
This Is Not a Pity Memoir
by Abi Morgan
The LDN Book: How a Little-Known Generic Drug ― Low Dose Naltrexone ― Could Revolutionize Treatment for Autoimmune Diseases, Cancer,Autism, Depression, and More
Yoga and Multiple Sclerosis: A Journey to Health and Healing
by Loren M. Fishman MD and Eric L. Small
I Have MS. What’s Your Super Power?
Stumbling In Flats
by Barbara Stensland and Janis Winehouse
In This Together: My Story
by Ann Romney
Balls to MS: 20 Years of Discovering Your Body Hates You
by Andy Reynard
Darkhawk: Airborne Paperback — March 1, 2022
by Kyle Higgins (Author), Danny Fingeroth
REAL PEOPLE
The beauty of these stories and studies is that they are real people (except Dark Hawk) and they would love to talk to you about the thing we all have in common: multiple sclerosis. And there are SO Many more books out there, so many stories to share.
There is a village out there for us. People who “get it”. Authentic individuals who appreciate one another. Reach out. You won’t regret it.
Lisa, Lady With the Cane
