Wouldn’t it be great to fully recover?
After twenty years of dealing with the MonSter, I’ve stopped getting excited about relapse recovery. What once left me hopeful now serves to remind me more and more that THERE IS NO RECOVERY.
I hate to be a Debbie-downer, but it’s the truth.
Might as well get used to it. The MonSter is here to stay.
I know I control how much I allow MS to rule my life. I’ve read the hype that MS does not define me. I take surveys and respond to legislative queries. My MS advocate pom-poms don’t get dusty.
The money I’ve spent on experimental assistance is ridiculous. When asked why I do it, my honest and sincere reply is that I need to know so I can share my findings with other Warriors. It’s not just for me. It’s for all of us.
I have an impressive arsenal of walking aids, exercise bands, balls, and PT equipment. My medicine cabinet overflows with pharmaceuticals, both prescription and alternative. Lotions, creams, and oils cover my bedside table. Books upon books about multiple sclerosis diets, memoirs, and healing solutions gather dust in several rooms of my house.
I do the walks and read the blogs. I converse with fellow MSers and attend neurological functions. I’ve written two books on the subject and I talk freely about my experience with multiple sclerosis.
Regardless of all I do, the MonSter isn’t going away.
It becomes increasingly clear that I will never dance again or hike. My bike riding days are over. I can no longer hold my hair dryer or play the piano. My inability to perform simple tasks dictates my social and personal life.
My days are filled with rationing spoons.
Feeling better about life?
Let’s turn the page.
Living with multiple sclerosis is hard, and it doesn’t get any easier.
But, if we concentrate on what we can do instead of what once was, life is much nicer.